Dr Kenneth Silver

Dr. Kenneth Silver was interviewed by AHCIM in July 2014

The purpose of AHC International Library is to collect information about AHC and related disorders and make them visible for everyone.

Doctors, researchers and family can share information on this media and together we can help each other get closer to the goal of having an effective treatment for AHC.

AHCIM will continue to interview interested parties that have information on AHC or related disorders to share .

For more information: www.ahcim.com

Contact us at ahc@ahc.is

Arn M.J.M van den Maagdenberg – London 2016

Arn M.J.M van den Maagdenberg, professor of neurogenetics, was interviewed by AHCIM in London 2016

The purpose of AHC International Media is to collect information about AHC and related disorders and make them visible for everyone.

Doctors, researchers and family can share information on this media and together we can help each other get closer to the goal of having an effective treatment for AHC.

AHCIM will continue to interview interested parties that have information on AHC or related disorders to share .

For more information: www.ahcim.com

Contact us at ahc@ahc.is

Caroline Dion

Caroline Dion, mother of Kaya, was interviewed by AHCIM in Minneapolis, 2014

“Caroline found the diagnosis for her daughter without help from the medical community”

The purpose of AHC International Library is to collect information about AHC and related disorders and make them visible for everyone.

Doctors, researchers and family can share information on this media and together we can help each other get closer to the goal of having an effective treatment for AHC.

AHCIM will continue to interview interested parties that have information on AHC or related disorders to share .

For more information: www.ahcim.com

Contact us at ahc@ahc.is

Landis Pino

Landis Pino, Mother of Madison and Marley, was interviewed by the AHCIM in October 2014

Landis has TWO children affected by AHC which is extremely rare.
When the interview was done she did not have the confirmation that her youngest daughter was affected.

Helen Cross

Professor Helen Cross was interviewed by AHCIM in London, May 2015

“If we find a treatment for AHC it may well help other disorders”

“the children who now are negative for mutation in ATP1A3 may teach us even more then those that are positive”

http://www.gosh.nhs.uk/medical-information/staff-z/helen-cross

Meg Krenn

Meg Krenn, mother of Emory, was interviewed by AHCIM in August 2015

Meg and Bill Krenn have 4 children together which is not common among AHC families.
They have a very positive outlook on life.
Meg tells us about their life with AHC and that they will never lose hope

Mallory Eastman

Mallory Eastman, sister of Caroline Eastman, was interviewed by AHCIM in August 2015

Mallory shares her view as a sibling to an AHC hero.
She tells us among other things how hard it is to explain what AHC really is.
She also explains how the ketogenic diet is affecting Caroline.