The Lentze Family

The Lentze family was interviewed by AHCIM in September 2014
Indy is diagnosed with AHC

“We can learn a lot from Indy because she lives for every day”

The purpose of AHC International Library is to collect information about AHC and related disorders and make them visible for everyone.

Doctors, researchers and family can share information on this media and together we can help each other get closer to the goal of having an effective treatment for AHC.

AHCIM will continue to interview interested parties that have information on AHC or related disorders to share .

For more information:

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Dominique Poncelin

Dominique Poncelin is father of Patrik was interviewed by AHCIM in August 2014

“Patrik has very severe seizures and has to be put in an artificial coma for 8-20 days two times a year on average”