Dr Kenneth Silver

Dr. Kenneth Silver was interviewed by AHCIM in July 2014

The purpose of AHC International Library is to collect information about AHC and related disorders and make them visible for everyone.

Doctors, researchers and family can share information on this media and together we can help each other get closer to the goal of having an effective treatment for AHC.

AHCIM will continue to interview interested parties that have information on AHC or related disorders to share .

For more information: www.ahcim.com

Contact us at ahc@ahc.is

Arn M.J.M van den Maagdenberg – London 2016

Arn M.J.M van den Maagdenberg, professor of neurogenetics, was interviewed by AHCIM in London 2016

The purpose of AHC International Media is to collect information about AHC and related disorders and make them visible for everyone.

Doctors, researchers and family can share information on this media and together we can help each other get closer to the goal of having an effective treatment for AHC.

AHCIM will continue to interview interested parties that have information on AHC or related disorders to share .

For more information: www.ahcim.com

Contact us at ahc@ahc.is

Habeeb and Abimbola Adeleye

Habeeb and Abimbola Adeleye, parents of Abdulhaseeb, were interviewed at AHCF family meeting in 2014

“without a family support group it´s like we are all alone”

The purpose of AHC International Library is to collect information about AHC and related disorders and make them visible for everyone.

Doctors, researchers and family can share information on this media and together we can help each other get closer to the goal of having an effective treatment for AHC.

AHCIM will continue to interview interested parties that have information on AHC or related disorders to share .

For more information: www.ahcim.com

Contact us at ahc@ahc.is

The Lentze Family

The Lentze family was interviewed by AHCIM in September 2014
Indy is diagnosed with AHC

“We can learn a lot from Indy because she lives for every day”

The purpose of AHC International Library is to collect information about AHC and related disorders and make them visible for everyone.

Doctors, researchers and family can share information on this media and together we can help each other get closer to the goal of having an effective treatment for AHC.

AHCIM will continue to interview interested parties that have information on AHC or related disorders to share .

For more information: www.ahcim.com

Contact us at ahc@ahc.is

Marley Weaver

On September 21st, 2013 Marley Weaver was diagnosed with Alternating Hemiplegia of Childhood (AHC) which is a very rare neurological disorder which cause paralysis that attacks either one or both sides of the body. The paralysis can last for minutes, hours or days. There is currently no cure for AHC. Marley is currently 23 months old and fighting AHC. She is such a bubbly little girl and is always full of laughter. There is never a moment when she isn’t smiling. Towards the end of June 2014 there is an AHC gathering for family’s who have children with this disorder. It is located in Minneapolis, Minnesota. The doctors who found the gene and who specialize in children with AHC will gather and explain the disorder

Joshua Marszalek

Joshua Marszalek, father of Kathryn was interviewed by AHCIM in July 2014

“We went through a period of mourning because family plans and goals are rewritten when you have an AHC child”

 

 

Landis Pino

Landis Pino, Mother of Madison and Marley, was interviewed by the AHCIM in October 2014

Landis has TWO children affected by AHC which is extremely rare.
When the interview was done she did not have the confirmation that her youngest daughter was affected.