Dr Kenneth Silver

Dr. Kenneth Silver was interviewed by AHCIM in July 2014

The purpose of AHC International Library is to collect information about AHC and related disorders and make them visible for everyone.

Doctors, researchers and family can share information on this media and together we can help each other get closer to the goal of having an effective treatment for AHC.

AHCIM will continue to interview interested parties that have information on AHC or related disorders to share .

For more information: www.ahcim.com

Contact us at ahc@ahc.is

Allison Brashear – London 2016

Allison Brashear, Professor of neurology, was interviewed by AHCIM in London 2016

Allison is looking to teens or young adults that have the ATP1A3 mutation to participate in a study

The purpose of AHC International Media is to collect information about AHC and related disorders and make them visible for everyone.

Doctors, researchers and family can share information on this media and together we can help each other get closer to the goal of having an effective treatment for AHC.

AHCIM will continue to interview interested parties that have information on AHC or related disorders to share .

For more information: www.ahcim.com

Contact us at ahc@ahc.is

Arn M.J.M van den Maagdenberg – London 2016

Arn M.J.M van den Maagdenberg, professor of neurogenetics, was interviewed by AHCIM in London 2016

The purpose of AHC International Media is to collect information about AHC and related disorders and make them visible for everyone.

Doctors, researchers and family can share information on this media and together we can help each other get closer to the goal of having an effective treatment for AHC.

AHCIM will continue to interview interested parties that have information on AHC or related disorders to share .

For more information: www.ahcim.com

Contact us at ahc@ahc.is

Elisa de Grandis – London 2016

Elisa de Grandis, paediatric neurologist, was interviewed by AHCIM in London 2016 at the ATP1A3 symposium

The purpose of AHC International Media is to collect information about AHC and related disorders and make them visible for everyone.

Doctors, researchers and family can share information on this media and together we can help each other get closer to the goal of having an effective treatment for AHC.

AHCIM will continue to interview interested parties that have information on AHC or related disorders to share .

For more information: www.ahcim.com

Contact us at ahc@ahc.is

Rick Simpson – Does cannabis oil help AHC?

Rick Simpson, entrepreneur, was interviewed by AHCIM in Reykjavik, 2014

The purpose of AHC International Library is to collect information about AHC and related disorders and make them visible for everyone.

Doctors, researchers and family can share information on this media and together we can help each other get closer to the goal of having an effective treatment for AHC.

AHCIM will continue to interview interested parties that have information on AHC or related disorders to share .

For more information: www.ahcim.com

Contact us at ahc@ahc.is

Richard D´Alli Pschycologist at Duke University

 

Dr. Richard D´Alli is an amazing person with a very interesting past. He has worked for NASA and was an anchor man at a Television station.
He is now working at Duke University as a pediatric psychologist.

The purpose of AHC International Library is to collect information about AHC and related disorders and make them visible for everyone.

 

Doctors, researchers and family can share information on this media and together we can help each other get closer to the goal of having an effective treatment for AHC.

 

AHCIM will continue to interview interested parties that have information on AHC or related disorders to share .

 

For more information: www.ahcim.com

 

Contact us at ahc@ahc.is

 

Steven Petrou

Steven Petrou, Professor of physiology, was interviewed by the AHCIM in August 2015

Associate Professor Petrou is a Deputy Director, Head of the Florey’s Division of Epilepsy, and heads the Laboratory of Ion Channels and Human Disease, a multidisciplinary team of researchers with a focus on revealing fundamental mechanisms of disease genesis in the central nervous system. Current major areas of investigation centre on the development and characterisation of genetically engineered mice models for the study of human familial epilepsy. He works closely with industry and has several patents for his discoveries. In addition to his many roles within the Florey Institutes and the University of Melbourne, he serves on the editorial board of the Journal Neurobiology of Disease and the Investigators Workshop Committee for the American Epilepsy Society

Landis Pino

Landis Pino, Mother of Madison and Marley, was interviewed by the AHCIM in October 2014

Landis has TWO children affected by AHC which is extremely rare.
When the interview was done she did not have the confirmation that her youngest daughter was affected.

Helen Cross

Professor Helen Cross was interviewed by AHCIM in London, May 2015

“If we find a treatment for AHC it may well help other disorders”

“the children who now are negative for mutation in ATP1A3 may teach us even more then those that are positive”

http://www.gosh.nhs.uk/medical-information/staff-z/helen-cross