Media site for the AHC disease
Dr. Hendrik Rosewich was interviewed by AHCIM in June 2014
“If we can just reduce the spells it would tremendously improve quality of life”
“I am fascinated by the patient organisations, by the power of patient societies and how helpful they are”
“laughing can trigger an hemiplegic episode and this is really sad”
This is the inspirational story of the Wuchich family & their son Matthew who suffers from a rare disease called Alternating Hemiplegia of Childhood (AHC). His determination to live life to the fullest despite the extreme challenges of AHC will warm your heart & motivate you to want to help in the quest to cure this debilitating disease.
Lisa and her super dedicated parents Renee and Paul open their home to raise awareness on AHC
Duke researchers find gene mutation for childhood disorder
Click HERE for the story
Jeff Wuchich father of Matthew and co-founder/president of CureAHC explains AHC in 2:46 and does a great job