Last episode of the interview on the creation of a Rare Disease Registry and on the proactive role that patients can have in this process.
Many thanks again to Francesca Sofia for this fantastic experience!
You can watch the full interview on Youtube
https://www.youtube.com/watch?v=i5Io_k3uKA0&feature=youtu.be
https://www.facebook.com/sciencecompass/videos/250711508669903/
