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May 26, 2022
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ATP1A3 Symposium in Disease – Reykjavik 2019

February 10, 2020February 10, 2020 - by siggi

The ATP1A3 Symposium in Disease was held in Reykjavik, Iceland on October 2-4th 2019 The President of Iceland, Gudni Th. Jóhannesson opened the symposium with a message that we should …

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Associations

The voices of AHC

November 12, 2019November 11, 2019 - by siggi

The voices of AHC video was showed at a Hope for Annabel fundraiser where 830.000$ were raised.

The voices of AHC Read More
Associations / Interviews / News

AAV gene therapy for AHC – Any donation is a step forward

November 4, 2018November 4, 2018 - by siggi

Please support this campaign: Go Fund Me Simon Frost, father to Annabel Frost, tells us how YOU can help shape the future for thousands and possibly millions og people by …

AAV gene therapy for AHC – Any donation is a step forward Read More
Associations / Interviews

Lynn Egan – Together we are strong

October 18, 2018 - by siggi

Lynn Egan is the current President of AHCF. She began her journey to find families and a treatment/cure for AHC after her youngest daughter Kathleen was diagnosed in 1991. She …

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Associations / Home Videos

Sunna Valdis – Reykjavik Marathon 2017

July 19, 2018July 21, 2018 - by siggi

This video is about Sunna´s first marathon 2017. She participated in the Reykjavik Marathon on August 19th and enjoyed it to the max. Sunna is diagnosed with Alternating Hemiplegia of …

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Associations / Home Videos

Sunna Valdís – Alternating Hemiplegia of Childhood

July 19, 2018July 21, 2018 - by siggi

Icelandic introduction on AHC

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Associations / Documentaries / Home Videos

Sunna Valdis – Alternating Hemiplegia of Childhood

July 19, 2018July 21, 2018 - by siggi

This video was the first one we did with Agusta Fanney and has helped many families get diagnoses for their children

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Associations / Presentations

Cure AHC Awareness Video

August 18, 2016July 22, 2018 - by siggi
Cure AHC Awareness Video Read More
Associations

Join us in the battle to cure AHC

June 20, 2016July 23, 2018 - by siggi
Join us in the battle to cure AHC Read More
Associations

Determination bears hope

March 6, 2016July 23, 2018 - by siggi

This is the inspirational story of the Wuchich family & their son Matthew who suffers from a rare disease called Alternating Hemiplegia of Childhood (AHC). His determination to live life …

Determination bears hope Read More

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Recent Posts

  • Prof. Sanjay Sisodiya explains AHC
  • Dr. Al George – AHC interview 2019 – Reykjavik, Iceland
  • Dr. Steven Gray – ATP1A3 symposium in Reykjavik, Iceland
  • Sho Yano – ATP1A3 symposium in Reykjavik, Iceland
  • Hanne Poulsen – ATP1A3 symposium in Reykjavik, Iceland

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