Media site for AHC and related disorders
The ATP1A3 Symposium in Disease was held in Reykjavik, Iceland on October 2-4th 2019 The President of Iceland, Gudni Th. Jóhannesson opened the symposium with a message that we should …
ATP1A3 Symposium in Disease – Reykjavik 2019 Read More
The voices of AHC video was showed at a Hope for Annabel fundraiser where 830.000$ were raised.
The voices of AHC Read More
Please support this campaign: Go Fund Me Simon Frost, father to Annabel Frost, tells us how YOU can help shape the future for thousands and possibly millions og people by …
AAV gene therapy for AHC – Any donation is a step forward Read More
Lynn Egan is the current President of AHCF. She began her journey to find families and a treatment/cure for AHC after her youngest daughter Kathleen was diagnosed in 1991. She …
Lynn Egan – Together we are strong Read More
This video is about Sunna´s first marathon 2017. She participated in the Reykjavik Marathon on August 19th and enjoyed it to the max. Sunna is diagnosed with Alternating Hemiplegia of …
Sunna Valdis – Reykjavik Marathon 2017 Read More
Icelandic introduction on AHC
Sunna Valdís – Alternating Hemiplegia of Childhood Read More
This video was the first one we did with Agusta Fanney and has helped many families get diagnoses for their children
Sunna Valdis – Alternating Hemiplegia of Childhood Read More
This is the inspirational story of the Wuchich family & their son Matthew who suffers from a rare disease called Alternating Hemiplegia of Childhood (AHC). His determination to live life …
Determination bears hope Read More