Leigh Mack at the ATP1A3 symposium in Chicago 2018
What are the approached we could use to find a treatment for AHC? Dr. Leigh J. Mack is an alumni of Indiana State University He is also a graduate of …
Read MoreInterviews
Dr. Hendrik Rosewich -Optimistic about new discoveries
Dr. Rosewich, MD is an assistant Professor, pediatric neurologoist and senior physician in the Department of Pediatrics and Adolescent Medicine, Division of Pediatric Neurology at the University Medical Center Goettingen …
Read More
Kenneth Silver – Improving quality of life for AHC Patients? 3/3
Dr. Kenneth Silver tells us what can be done to improve quality of life for AHC kids. Dr. Kenneth Silver, Associate Professor, child neurology Dr Silver is an AHC researcher …
Read More
Kenneth Silver – Why do not all AHC Patients have the ATP1A3 mutation? 2/3
Dr. Silver answers questions from parents that were not able to join the ATP1A3 symposium in Chicago 2018 Dr. Kenneth Silver, Associate Professor, child neurology Dr Silver is an AHC …
Read More Dr. Kenneth Silver at the ATP1A3 symposium in Chicago 1/3
Dr. Kenneth Silver, Associate Professor, child neurology Dr Silver is an AHC researcher and one of very few AHC specialists in the world. Shriners Hospitals for Children Chicago, USA Kenneth …
Read More
AAV gene therapy for AHC – Any donation is a step forward
Please support this campaign: Go Fund Me Simon Frost, father to Annabel Frost, tells us how YOU can help shape the future for thousands and possibly millions og people by …
Read More
Simon Frost at the ATP1A3 Symposium in Disease – Chicago 2018
Simon Frost tells us about AAV gene therapy that can potentially help AHC
Read More
Dr Steven Gray talks about AAV gene therapy that can potentially help AHC patients.
Dr. Steven Gray is one of the world leaders in developing gene therapies for rare and ultra-rare diseases. He works at the University of Texas Southwestern, where he is currently …
Read More
Lynn Egan – Together we are strong
Lynn Egan is the current President of AHCF. She began her journey to find families and a treatment/cure for AHC after her youngest daughter Kathleen was diagnosed in 1991. She …
Read More
Spotlight on Chris Gallagher (CAPOS Ataxia)
This video is based on an individual called Chris Gallagher, who has a rare medical condition called (CAPOS), which Involves the symptoms of Cerebellar Ataxia, Areflexia, Pes Cavus, Optic Atrophy, …
Read More