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May 26, 2022
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ABBY AHC AWARENESS VIDEO

January 25, 2020January 25, 2020 - by siggi

This is a video about Abby who suffers from a rare disease AHC. Additional footage from the “Human Timebombs Documentary” has been included in this video. ABBY AHC AWARENESS VIDEO …

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Ollie´s Story

June 24, 2019June 24, 2019 - by siggi

Ollie was born with Alternating Hemiplegia of Childhood, meaning any muscle in his body can become paralysed at any time, including his lungs and heart. Like any other seven year …

Ollie´s Story Read More
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Katrine drives an ATV

February 18, 2019February 18, 2019 - by siggi

Katrine lives in Denmark on a farm and has learned to drive an ATV on the farm grounds. Her dog follows her wherever she goes. When she rides the ATV …

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Carmel part 2

February 7, 2019February 7, 2019 - by siggi

Alternating Hemiplegia of Childhood is an extremely rare and cruel disorder. AHC is difficult for medical professionals to understand and families struggle to put to words the variability of each …

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Carmel part 1

February 7, 2019February 7, 2019 - by siggi

Alternating Hemiplegia of Childhood is an extremely rare and cruel disorder. AHC is difficult for medical professionals to understand and families struggle to put to words the variability of each …

Carmel part 1 Read More
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Crawling properly age 3.

February 7, 2019February 7, 2019 - by siggi

Here is Ruby diagnosed with AHC at age 3 just starting to crawl properly

Crawling properly age 3. Read More
Home Videos / Uncategorized

Sunna Valdis Sigurdardottir 2018 (12)

January 20, 2019March 23, 2019 - by siggi

This video is about Sunna Valdis Sigurdardottir who is diagnosed with Alternating Hemiplegia of Childhood (AHC). Sunna lives in Iceland Here are some of the episodes of AHC

Sunna Valdis Sigurdardottir 2018 (12) Read More
Home Videos / Interviews

Spotlight on Chris Gallagher (CAPOS Ataxia)

August 20, 2018 - by siggi

This video is based on an individual called Chris Gallagher, who has a rare medical condition called (CAPOS), which Involves the symptoms of Cerebellar Ataxia, Areflexia, Pes Cavus, Optic Atrophy, …

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Dax having a nystagmus episode

August 4, 2018 - by siggi

Dax is diagnosed with Alternating Hemiplegia of Childhood which is one of the most complicated neurological disorders known to man. AHC has all the symptoms of all other neurological disorders. …

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Right side hemiplegia

July 29, 2018 - by siggi

Episode with already onset of full right side hemiplegia

Right side hemiplegia Read More

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