Katrine drives an ATV
Katrine lives in Denmark on a farm and has learned to drive an ATV on the farm grounds. Her dog follows her wherever she goes. When she rides the ATV …
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Carmel part 2
Alternating Hemiplegia of Childhood is an extremely rare and cruel disorder. AHC is difficult for medical professionals to understand and families struggle to put to words the variability of each …
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Carmel part 1
Alternating Hemiplegia of Childhood is an extremely rare and cruel disorder. AHC is difficult for medical professionals to understand and families struggle to put to words the variability of each …
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Crawling properly age 3.
Here is Ruby diagnosed with AHC at age 3 just starting to crawl properly
Read MoreSunna Valdis Sigurdardottir 2018 (12)
This video is about Sunna Valdis Sigurdardottir who is diagnosed with Alternating Hemiplegia of Childhood (AHC). Sunna lives in Iceland Here are some of the episodes of AHC
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Dr. Kevin Ess talks about CBD trial for AHC and gets the BIG question…..
Dr. Kevin Ess tells us why we should study CBD oil as a treatment for Alternating Hemiplegia of Childhood. Does CBD help AHC patients? Dr. Kevin Ess gets the big …
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Has Keiko Ikeda found the core problem of AHC?
Dr. Keiko Ikeda Keiko IkedaIntl. Univ. Health and Welfare, Japan Keiko´s lab has been working with knock-out mice (ATP1A3/ATP1A2) for 20 years.They have found that not only is the Sodium/potassium …
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Dr. Kevin Ess talks about past and future research at the ATP1A3 symposium in Chicago 2018
Kevin Ess is one of the organisers for 7th ATP1A3 symposium in Disease In this interview he tells us about the stem cell lines that his laboratory in Vanderbilt is …
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Arn M.J.M. van den Maagdenberg at the ATP1A3 symposium in disease – Chicago 2018
Professor Arn M.J.M van den Maagdenberg talks about why some AHC patients have a mutation in ATP1A3 and some in ATP1A2? What is the sodium/potassium pump? If AHC patients do …
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