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February 22, 2019

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Katrine drives an ATV

February 18, 2019February 18, 2019 - by siggi - Leave a Comment

Katrine lives in Denmark on a farm and has learned to drive an ATV on the farm grounds. Her dog follows her wherever she goes. When she rides the ATV …

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Carmel part 2

February 7, 2019February 7, 2019 - by siggi - Leave a Comment

Alternating Hemiplegia of Childhood is an extremely rare and cruel disorder. AHC is difficult for medical professionals to understand and families struggle to put to words the variability of each …

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Home Videos

Carmel part 1

February 7, 2019February 7, 2019 - by siggi - Leave a Comment

Alternating Hemiplegia of Childhood is an extremely rare and cruel disorder. AHC is difficult for medical professionals to understand and families struggle to put to words the variability of each …

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Home Videos

Crawling properly age 3.

February 7, 2019February 7, 2019 - by siggi - Leave a Comment

Here is Ruby diagnosed with AHC at age 3 just starting to crawl properly

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Sunna Valdis Sigurdardottir 2018 (12)

January 20, 2019January 20, 2019 - by siggi - Leave a Comment

This video is about Sunna Valdis Sigurdardottir who is diagnosed with Alternating Hemiplegia of Childhood (AHC). Sunna lives in Iceland Here are some of the episodes of AHC

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Girl with a rare disease has a ticking time bombs in her brain

December 30, 2018December 30, 2018 - by siggi - Leave a Comment
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Dr. Kevin Ess talks about CBD trial for AHC and gets the BIG question…..

December 17, 2018December 17, 2018 - by siggi - Leave a Comment

Dr. Kevin Ess tells us why we should study CBD oil as a treatment for Alternating Hemiplegia of Childhood. Does CBD help AHC patients? Dr. Kevin Ess gets the big …

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Has Keiko Ikeda found the core problem of AHC?

December 8, 2018December 8, 2018 - by siggi - Leave a Comment

Dr. Keiko Ikeda Keiko IkedaIntl. Univ. Health and Welfare, Japan Keiko´s lab has been working with knock-out mice (ATP1A3/ATP1A2) for 20 years.They have found that not only is the Sodium/potassium …

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Interviews

Dr. Kevin Ess talks about past and future research at the ATP1A3 symposium in Chicago 2018

December 3, 2018December 3, 2018 - by siggi - Leave a Comment

Kevin Ess is one of the organisers for 7th ATP1A3 symposium in Disease In this interview he tells us about the stem cell lines that his laboratory in Vanderbilt is …

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Interviews

Arn M.J.M. van den Maagdenberg at the ATP1A3 symposium in disease – Chicago 2018

November 30, 2018November 30, 2018 - by siggi - Leave a Comment

Professor Arn M.J.M van den Maagdenberg talks about why some AHC patients have a mutation in ATP1A3 and some in ATP1A2? What is the sodium/potassium pump? If AHC patients do …

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  • Katrine drives an ATV
  • Carmel part 2
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