Dr. Rosewich, MD is an assistant Professor, pediatric neurologoist and senior physician in the Department of Pediatrics and Adolescent Medicine, Division of Pediatric Neurology at the University Medical Center Goettingen …
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Dr. Kenneth Silver tells us what can be done to improve quality of life for AHC kids. Dr. Kenneth Silver, Associate Professor, child neurology Dr Silver is an AHC researcher …
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Dr. Silver answers questions from parents that were not able to join the ATP1A3 symposium in Chicago 2018 Dr. Kenneth Silver, Associate Professor, child neurology Dr Silver is an AHC …
Read More Dr. Kenneth Silver, Associate Professor, child neurology Dr Silver is an AHC researcher and one of very few AHC specialists in the world. Shriners Hospitals for Children Chicago, USA Kenneth …
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Please support this campaign: Go Fund Me Simon Frost, father to Annabel Frost, tells us how YOU can help shape the future for thousands and possibly millions og people by …
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Simon Frost tells us about AAV gene therapy that can potentially help AHC
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Dr. Steven Gray is one of the world leaders in developing gene therapies for rare and ultra-rare diseases. He works at the University of Texas Southwestern, where he is currently …
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Lynn Egan is the current President of AHCF. She began her journey to find families and a treatment/cure for AHC after her youngest daughter Kathleen was diagnosed in 1991. She …
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This is a short documentary produced by Ryan Murphy. It shows the daily struggles of the lives of 3 people who have a neurological movement disorder called Dystonia. For more …
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This video is based on an individual called Chris Gallagher, who has a rare medical condition called (CAPOS), which Involves the symptoms of Cerebellar Ataxia, Areflexia, Pes Cavus, Optic Atrophy, …
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