Ollie´s Story
Ollie was born with Alternating Hemiplegia of Childhood, meaning any muscle in his body can become paralysed at any time, including his lungs and heart. Like any other seven year …
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Carmel Hartman in the news
Carmel daughter of Sophie Hartman in the news
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How CRISPR-Cas9 works
Geneticist Jennifer Doudna co-invented a groundbreaking new technology for editing genes, called CRISPR-Cas9. The tool allows scientists to make precise edits to DNA strands, which could lead to treatments for …
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Can we cure genetic diseases by rewriting DNA?
In a story of scientific discovery, chemical biologist David R. Liu shares a breakthrough: his lab’s development of base editors that can rewrite DNA. This crucial step in genome editing …
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A wish mom’s story: Sophie
Wish mom Sophie shares her family’s story and how her daughter’s (Carmel) wish transformed their lives.
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Carmel in a Make-A-Wish Interview
Carmel is an amazing little girl battling Alternating Hemiplegia of Childhood. She was able to Make-A-Wish in 2017 and she was chosen to be the featured wish for WISH NIGHT …
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My one-in-a-million daughter
Nineteen month old Anya suffers from a rare neurological disorder which causes paralyses down one side of her body, tremors and breathing problems. https://www.bbc.co.uk/programmes/p074bd2m?fbclid=IwAR3XhL_3Mak6xpV5txrOU0DNExZbNPvYPP5zR_zuZLBjEHuQUlXC_593JKY The condition affects just one in …
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Katrine drives an ATV
Katrine lives in Denmark on a farm and has learned to drive an ATV on the farm grounds. Her dog follows her wherever she goes. When she rides the ATV …
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Carmel part 2
Alternating Hemiplegia of Childhood is an extremely rare and cruel disorder. AHC is difficult for medical professionals to understand and families struggle to put to words the variability of each …
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