Carmel in a Make-A-Wish Interview
Carmel is an amazing little girl battling Alternating Hemiplegia of Childhood. She was able to Make-A-Wish in 2017 and she was chosen to be the featured wish for WISH NIGHT …
Read More 
My one-in-a-million daughter
Nineteen month old Anya suffers from a rare neurological disorder which causes paralyses down one side of her body, tremors and breathing problems. https://www.bbc.co.uk/programmes/p074bd2m?fbclid=IwAR3XhL_3Mak6xpV5txrOU0DNExZbNPvYPP5zR_zuZLBjEHuQUlXC_593JKY The condition affects just one in …
Read More
Katrine drives an ATV
Katrine lives in Denmark on a farm and has learned to drive an ATV on the farm grounds. Her dog follows her wherever she goes. When she rides the ATV …
Read More
Carmel part 2
Alternating Hemiplegia of Childhood is an extremely rare and cruel disorder. AHC is difficult for medical professionals to understand and families struggle to put to words the variability of each …
Read More
Carmel part 1
Alternating Hemiplegia of Childhood is an extremely rare and cruel disorder. AHC is difficult for medical professionals to understand and families struggle to put to words the variability of each …
Read More
Crawling properly age 3.
Here is Ruby diagnosed with AHC at age 3 just starting to crawl properly
Read More
Sunna Valdis Sigurdardottir 2018 (12)
This video is about Sunna Valdis Sigurdardottir who is diagnosed with Alternating Hemiplegia of Childhood (AHC). Sunna lives in Iceland Here are some of the episodes of AHC
Read More
Dr. Kevin Ess talks about CBD trial for AHC and gets the BIG question…..
Dr. Kevin Ess tells us why we should study CBD oil as a treatment for Alternating Hemiplegia of Childhood. Does CBD help AHC patients? Dr. Kevin Ess gets the big …
Read More
Has Keiko Ikeda found the core problem of AHC?
Dr. Keiko Ikeda Keiko IkedaIntl. Univ. Health and Welfare, Japan Keiko´s lab has been working with knock-out mice (ATP1A3/ATP1A2) for 20 years.They have found that not only is the Sodium/potassium …
Read More