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February 25, 2021
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Interviews / News

There was no cure for their daughters rare condition

September 15, 2019September 15, 2019 - by siggi
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Home Videos

Ollie´s Story

June 24, 2019June 24, 2019 - by siggi

Ollie was born with Alternating Hemiplegia of Childhood, meaning any muscle in his body can become paralysed at any time, including his lungs and heart. Like any other seven year …

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News

Carmel Hartman in the news

June 1, 2019June 1, 2019 - by siggi

Carmel daughter of Sophie Hartman in the news

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Presentations

How CRISPR-Cas9 works

May 11, 2019May 11, 2019 - by siggi

Geneticist Jennifer Doudna co-invented a groundbreaking new technology for editing genes, called CRISPR-Cas9. The tool allows scientists to make precise edits to DNA strands, which could lead to treatments for …

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Presentations

Can we cure genetic diseases by rewriting DNA?

May 11, 2019May 11, 2019 - by siggi

In a story of scientific discovery, chemical biologist David R. Liu shares a breakthrough: his lab’s development of base editors that can rewrite DNA. This crucial step in genome editing …

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News / Presentations

A wish mom’s story: Sophie

April 1, 2019April 1, 2019 - by siggi

Wish mom Sophie shares her family’s story and how her daughter’s (Carmel) wish transformed their lives.

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Interviews / News

Carmel in a Make-A-Wish Interview

March 30, 2019March 30, 2019 - by siggi

Carmel is an amazing little girl battling Alternating Hemiplegia of Childhood. She was able to Make-A-Wish in 2017 and she was chosen to be the featured wish for WISH NIGHT …

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Interviews / News

My one-in-a-million daughter

March 23, 2019March 23, 2019 - by siggi

Nineteen month old Anya suffers from a rare neurological disorder which causes paralyses down one side of her body, tremors and breathing problems. https://www.bbc.co.uk/programmes/p074bd2m?fbclid=IwAR3XhL_3Mak6xpV5txrOU0DNExZbNPvYPP5zR_zuZLBjEHuQUlXC_593JKY The condition affects just one in …

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Home Videos

Katrine drives an ATV

February 18, 2019February 18, 2019 - by siggi

Katrine lives in Denmark on a farm and has learned to drive an ATV on the farm grounds. Her dog follows her wherever she goes. When she rides the ATV …

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Home Videos

Carmel part 2

February 7, 2019February 7, 2019 - by siggi

Alternating Hemiplegia of Childhood is an extremely rare and cruel disorder. AHC is difficult for medical professionals to understand and families struggle to put to words the variability of each …

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