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January 18, 2021
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Tag: epilepsy

Interviews

Dr Kenneth Silver

December 31, 2016July 22, 2018 - by siggi

Dr. Kenneth Silver was interviewed by AHCIM in July 2014 The purpose of AHC International Library is to collect information about AHC and related disorders and make them visible for …

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Interviews

Arn M.J.M van den Maagdenberg – London 2016

September 24, 2016July 22, 2018 - by siggi

Arn M.J.M van den Maagdenberg, professor of neurogenetics, was interviewed by AHCIM in London 2016 The purpose of AHC International Media is to collect information about AHC and related disorders …

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Interviews

Laufey Ýr Sigurdardottir – Pedriatic neurologist

May 5, 2016July 23, 2018 - by siggi

Dr Laufey Yr Sigurdardottir was interviewed by AHCIM in July 2014 “You have to have faith in yourself (as a neurologist) and you have to listen to the parents” The …

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Interviews

The Lentze Family

April 19, 2016July 23, 2018 - by siggi

The Lentze family was interviewed by AHCIM in September 2014 Indy is diagnosed with AHC “We can learn a lot from Indy because she lives for every day” The purpose …

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Interviews

Steven Petrou – Professor of physiology

April 10, 2016July 23, 2018 - by siggi

Steven Petrou, Professor of physiology, was interviewed by the AHCIM in August 2015 Associate Professor Petrou is a Deputy Director, Head of the Florey’s Division of Epilepsy, and heads the …

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Interviews

Caroline Dion – Mother to Kaya

February 28, 2016July 23, 2018 - by siggi

Caroline Dion, mother of Kaya, was interviewed by AHCIM in Minneapolis, 2014 “Caroline found the diagnosis for her daughter without help from the medical community” The purpose of AHC International …

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Interviews

Dominique Poncelin

November 4, 2015July 23, 2018 - by siggi

Dominique Poncelin is father of Patrik was interviewed by AHCIM in August 2014 “Patrik has very severe seizures and has to be put in an artificial coma for 8-20 days …

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Interviews

Landis Pino – Mother to Madison and Marley

October 25, 2015July 23, 2018 - by siggi

Landis Pino, Mother of Madison and Marley, was interviewed by the AHCIM in October 2014 Landis has TWO children affected by AHC which is extremely rare. When the interview was …

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Interviews

Dr. Helen Cross – ATP1A3 symposium in London

October 25, 2015July 23, 2018 - by siggi

Professor Helen Cross was interviewed by AHCIM in London, May 2015 “If we find a treatment for AHC it may well help other disorders” “the children who now are negative …

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Interviews

Meg Krenn – mother to Emory

October 25, 2015July 23, 2018 - by siggi

Meg Krenn, mother of Emory, was interviewed by AHCIM in August 2015 Meg and Bill Krenn have 4 children together which is not common among AHC families. They have a …

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  • Dr. Al George – AHC interview 2019 – Reykjavik, Iceland
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  • Hanne Poulsen – ATP1A3 symposium in Reykjavik, Iceland
  • Karin Lykke-Hartmann – ATP1A3 symposium in Reykjavik

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