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January 23, 2021
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Tag: hemiplegia

Associations / Interviews / News

ATP1A3 Symposium in Disease – Reykjavik 2019

February 10, 2020February 10, 2020 - by siggi

The ATP1A3 Symposium in Disease was held in Reykjavik, Iceland on October 2-4th 2019 The President of Iceland, Gudni Th. Jóhannesson opened the symposium with a message that we should …

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Associations

The voices of AHC

November 12, 2019November 11, 2019 - by siggi

The voices of AHC video was showed at a Hope for Annabel fundraiser where 830.000$ were raised.

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Home Videos

Carmel part 2

February 7, 2019February 7, 2019 - by siggi

Alternating Hemiplegia of Childhood is an extremely rare and cruel disorder. AHC is difficult for medical professionals to understand and families struggle to put to words the variability of each …

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Home Videos

Crawling properly age 3.

February 7, 2019February 7, 2019 - by siggi

Here is Ruby diagnosed with AHC at age 3 just starting to crawl properly

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Home Videos / Uncategorized

Sunna Valdis Sigurdardottir 2018 (12)

January 20, 2019March 23, 2019 - by siggi

This video is about Sunna Valdis Sigurdardottir who is diagnosed with Alternating Hemiplegia of Childhood (AHC). Sunna lives in Iceland Here are some of the episodes of AHC

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Home Videos

Right side hemiplegia

July 29, 2018 - by siggi

Episode with already onset of full right side hemiplegia

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Home Videos

Sunna Valdis in an AHC episode.

July 19, 2018July 21, 2018 - by siggi

Sunna Valdis in an AHC episode. She is paralized in her right side. She also has Dystonia in both legs. She is unable to speak, unable to eat or drink. …

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Interviews

Dr Kenneth Silver

December 31, 2016July 22, 2018 - by siggi

Dr. Kenneth Silver was interviewed by AHCIM in July 2014 The purpose of AHC International Library is to collect information about AHC and related disorders and make them visible for …

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Interviews

Arn M.J.M van den Maagdenberg – London 2016

September 24, 2016July 22, 2018 - by siggi

Arn M.J.M van den Maagdenberg, professor of neurogenetics, was interviewed by AHCIM in London 2016 The purpose of AHC International Media is to collect information about AHC and related disorders …

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Interviews

Habeeb and Abimbola Adeleye

May 12, 2016July 23, 2018 - by siggi

Habeeb and Abimbola Adeleye, parents of Abdulhaseeb, were interviewed at AHCF family meeting in 2014 “without a family support group it´s like we are all alone” The purpose of AHC …

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Recent Posts

  • Dr. Al George – AHC interview 2019 – Reykjavik, Iceland
  • Dr. Steven Gray – ATP1A3 symposium in Reykjavik, Iceland
  • Sho Yano – ATP1A3 symposium in Reykjavik, Iceland
  • Hanne Poulsen – ATP1A3 symposium in Reykjavik, Iceland
  • Karin Lykke-Hartmann – ATP1A3 symposium in Reykjavik

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