ATP1A3 Symposium in Disease – Reykjavik 2019
The ATP1A3 Symposium in Disease was held in Reykjavik, Iceland on October 2-4th 2019 The President of Iceland, Gudni Th. Jóhannesson opened the symposium with a message that we should …
Read MoreTag: hemiplegia
The voices of AHC
The voices of AHC video was showed at a Hope for Annabel fundraiser where 830.000$ were raised.
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Carmel part 2
Alternating Hemiplegia of Childhood is an extremely rare and cruel disorder. AHC is difficult for medical professionals to understand and families struggle to put to words the variability of each …
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Crawling properly age 3.
Here is Ruby diagnosed with AHC at age 3 just starting to crawl properly
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Sunna Valdis Sigurdardottir 2018 (12)
This video is about Sunna Valdis Sigurdardottir who is diagnosed with Alternating Hemiplegia of Childhood (AHC). Sunna lives in Iceland Here are some of the episodes of AHC
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Right side hemiplegia
Episode with already onset of full right side hemiplegia
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Sunna Valdis in an AHC episode.
Sunna Valdis in an AHC episode. She is paralized in her right side. She also has Dystonia in both legs. She is unable to speak, unable to eat or drink. …
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Dr Kenneth Silver
Dr. Kenneth Silver was interviewed by AHCIM in July 2014 The purpose of AHC International Library is to collect information about AHC and related disorders and make them visible for …
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Arn M.J.M van den Maagdenberg – London 2016
Arn M.J.M van den Maagdenberg, professor of neurogenetics, was interviewed by AHCIM in London 2016 The purpose of AHC International Media is to collect information about AHC and related disorders …
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Habeeb and Abimbola Adeleye
Habeeb and Abimbola Adeleye, parents of Abdulhaseeb, were interviewed at AHCF family meeting in 2014 “without a family support group it´s like we are all alone” The purpose of AHC …
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