Dr Kenneth Silver
Dr. Kenneth Silver was interviewed by AHCIM in July 2014 The purpose of AHC International Library is to collect information about AHC and related disorders and make them visible for …
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Arn M.J.M van den Maagdenberg – London 2016
Arn M.J.M van den Maagdenberg, professor of neurogenetics, was interviewed by AHCIM in London 2016 The purpose of AHC International Media is to collect information about AHC and related disorders …
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Dominique Poncelin
Dominique Poncelin is father of Patrik was interviewed by AHCIM in August 2014 “Patrik has very severe seizures and has to be put in an artificial coma for 8-20 days …
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Landis Pino – Mother to Madison and Marley
Landis Pino, Mother of Madison and Marley, was interviewed by the AHCIM in October 2014 Landis has TWO children affected by AHC which is extremely rare. When the interview was …
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Dr. Helen Cross – ATP1A3 symposium in London
Professor Helen Cross was interviewed by AHCIM in London, May 2015 “If we find a treatment for AHC it may well help other disorders” “the children who now are negative …
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Meg Krenn – mother to Emory
Meg Krenn, mother of Emory, was interviewed by AHCIM in August 2015 Meg and Bill Krenn have 4 children together which is not common among AHC families. They have a …
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Mallory Eastman – sister to Caroline Eastman
Mallory Eastman, sister of Caroline Eastman, was interviewed by AHCIM in August 2015 Mallory shares her view as a sibling to an AHC hero. She tells us among other things …
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Dr. Sho Yano – ATP1A3 symposium in Washington
Sho Yano was interviewed by AHCIM in Washington, DC, August 2015 Sho Yano believes that ATP1A3 mutations are much more common than we realize Some people have 1 or 2 …
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Lyndsay Johnsson
Lindsay Johnsson, administrator coordinator for Duke AHC clinic, was interviewed by AHCIM in October 2014 at Duke University, NC. The Duke AHC clinic is open for everyone For more information …
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Brittany Rosebrook – Mother to Tanner who starts an episode in the interview
Brittany Rosebrook, mother of Tanner, was interviewed by the AHCIM in August 2015 Brittany tells us their heartbreaking story and Tanner actually starts an episode in the interview.
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