by Vicky Lewis and Adrian Kowal, parents of Oliver (4 years), were interviewed by AHCIM in London 2016 at the ATP1A3 symposium
“We never know which Oliver wakes up in the morning and which Oliver we are putting to sleep at night”
The purpose of AHC International Media is to collect information about AHC and related disorders and make them visible for everyone.
Doctors, researchers and family can share information on this media and together we can help each other get closer to the goal of having an effective treatment for AHC.
AHCIM will continue to interview interested parties that have information on AHC or related disorders to share .
For more information: www.ahcim.com
Contact us at ahc@ahc.is
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