Skip to content

AHC International Media Library

Alternating Hemplegia of Childhood and ATP1A3 disorders

  • Interviews
  • Home Videos
  • News
  • Associations
  • Documentaries
  • Presentations
  • Contact
  • About AHCIM
  • Articles
  • Toggle search form

Sunna’s having a dystonic episode

Posted on February 24, 2026February 24, 2026 By siggi

This video shows Sunna during a severe generalized dystonic episode.
The episode affects her entire body — sustained muscle contractions force her arms inward, her legs into extension, and her neck into an abnormal posture. She is fully conscious but unable to control her movements.
To interrupt the episode, I administer Buccolam (midazolam) buccally. The medication is placed gently into the side of her mouth to be absorbed through the cheek.
Over the next few minutes, the dystonic contractions gradually reduce. The rigidity lessens. Her limbs slowly regain voluntary control.
By the end of the recording, the episode has resolved.
Sunna regains motor control and is once again able to move her body freely.
This is what recovery looks like.

Home Videos, Uncategorized

Post navigation

Previous Post: Behind the Episode, an AHC advocacy podcast
Next Post: Behind the Episode #1

Related Posts

Crawling properly age 3. Home Videos
AHC – Chorea Home Videos
Brook Tasi is shouting out for help Home Videos
Fifth & Goal – Go Carter! Home Videos
Sho Yano – ATP1A3 symposium in Reykjavik, Iceland Uncategorized
Full body tremors Home Videos

Copyright © 2026 AHC International Media Library.

Powered by PressBook Masonry Dark